Mercedes Schneider read a story last spring about a man who contracted polio in 1952 when he was six years, survived it, but spent the next 72 years dependent on an iron lung. Despite his limited ability to survive outside the machine, Paul Alexander finished college and law school, then practiced law. Before his death, he became a TikTok star.
When she read the story, it was interesting– but now it’s timely. After all, Trump has appointed a vaccine critic to run the Department of Health and Human services. Trump himself said in a national interview that he is skeptical about mandating vaccines for school children.
So Mercedes decided it was time to do some research about polio. Her post is engaging and brings back memories for those of us who were in school before the first vaccine was discovered and made available. We lived in terror of getting polio.
Alexander said:
In one video, Mr. Alexander detailed the emotional and mental challenges of living inside an iron lung.
“It’s lonely,” he said as the machine can be heard humming in the background. “Sometimes it’s desperate because I can’t touch someone, my hands don’t move, and no one touches me except in rare occasions, which I cherish.”
Chris McNaighton was an athlete in college and led an active life until tragedy struck: he was diagnosed with a painful, debilitating disease called ulcerative colitis. He was so disabled by its symptoms that he became housebound. After trying many treatments and doctors, he finally went to the Mayo Clinic, where a specialist prescribed a mix of drugs that were very expensive but saved his life.
Chris was covered by his parents’ insurance; they were both faculty members at Penn State. Chris enrolled at Penn State, so he was covered as a student as well.
UnitedHealth did not like paying the cost of Chris’s treatment. It was $2 million a year. It had Chris’s claims reviewed by doctors who denied them and said he could do with a lower dose, which would cost less. The doctor at Mayo responded that lower doses were ineffective.
Christopher McNaughton suffered from a crippling case of ulcerative colitis — an ailment that caused him to develop severe arthritis, debilitating diarrhea, numbing fatigue and life-threatening blood clots. His medical bills were running nearly $2 million a year.
United had flagged McNaughton’s case as a “high dollar account,” and the company was reviewing whether it needed to keep paying for the expensive cocktail of drugs crafted by a Mayo Clinic specialist that had brought McNaughton’s disease under control after he’d been through years of misery.
In the wake of the brutal murder of United Healthcare’s CEO, there has been an outpouring of stories about UnitedHealthcare’s strategy of denying claims to increase profits.
As a result, we have a very expensive healthcare system, in which people’s claims for coverage are frequently denied. Many people pay through the nose and don’t get the medical care they need because of their insurance companies.
His article is titled: “When Profits Kill: The Deadly Costs of Treating Healthcare as a Business.”
Hartmann wrote:
The recent assassination of the CEO of UnitedHealthcare — the health insurance company with, reportedly, the highest rate of claims rejections (and thus dead, wounded, and furious customers and their relations) — gives us a perfect window to understand the stupidity and danger of the Musk/Trump/Ramaswamy strategy of “cutting government” to “make it more efficient, run it like a corporation.”
Consider health care, which in almost every other developed country in the world is legally part of the commons — the infrastructure of the nation, like our roads, public schools, parks, police, military, libraries, and fire departments — owned by the people collectively and run for the sole purpose of meeting a basic human need.
The entire idea of government — dating all the way back to Gilgamesh and before — is to fulfill that singular purpose of meeting citizens’ needs and keeping the nation strong and healthy. That’s a very different mandate from that of a corporation, which is solely directed (some argue by law) to generate profits.
The Veterans’ Administration healthcare system, for example, is essentially socialist rather than capitalist. The VA owns the land and buildings, pays the salaries of everybody from the surgeons to the janitors, and makes most all decisions about care. Its primary purpose — just like that of the healthcare systems of every other democracy in the world — is to keep and make veterans healthy. Its operation is nearly identical to that of Britain’s beloved socialist National Health Service.
UnitedHealthcare similarly owns its own land and buildings, and its officers and employees behave in a way that’s aligned with the company’s primary purpose, but that purpose is to make a profit. Sure, it writes checks for healthcare that’s then delivered to people, but that’s just the way UnitedHealthcare makes money; writing checks and, most importantly, refusing to write checks.
Think about it. If UnitedHealthcare’s main goal was to keep people healthy, they wouldn’t be rejecting 32 percent of claims presented to them. Like the VA, when people needed help they’d make sure they got it.
Instead, they make damn sure their executives get millions of dollars every year (and investors get billions) because making a massive profit ($23 billion last year, and nearly every penny arguably came from saying “no” to somebody’s healthcare needs) is their real business.
On the other hand, if the VA’s goal was to make or save money by “being run efficiently like a company,” they’d be refusing service to a lot more veterans (which it appears is on the horizon).
This is the essential difference between government and business, between meeting human needs (social) and reaching capitalism’s goal (profit).
It’s why its deeply idiotic to say, as Republicans have been doing since the Reagan Revolution, that “government should be run like a business.” That’s nearly as crackbrained a suggestion as saying that fire departments should make a profit (a doltish notion promoted by some Libertarians). Government should be run like a government, and companies should be run like companies.
Given how obvious this is with even a little bit of thought, where did this imbecilic idea that government should run like a business come from?
Turns out, it’s been driven for most of the past century by morbidly rich businessmen (almost entirely men) who don’t want to pay their taxes. As Jeff Tiedrich notes:
“The scariest sentence in the English language is: ‘I’m a billionaire, and I’m here to help.’”
Rightwing billionaires who don’t want to pay their fair share of the costs of society set up think tanks, policy centers, and built media operations to promote their idea that the commons are really there for them to plunder under the rubric of privatization and efficiency.
They’ve had considerable success. Slightly more than half of Medicare is now privatized, multiple Republican-controlled states are in the process of privatizing their public school systems, and the billionaire-funded Project 2025 and the incoming Trump administration have big plans for privatizing other essential government services.
The area where their success is most visible, though, is the American healthcare system. Because the desire of rightwing billionaires not to pay taxes have prevailed ever since Harry Truman first proposed single-payer healthcare like most of the rest of the world has, Americans spend significantly more on healthcare than other developed countries.
In 2022, citizens of the United States spent an estimated $12,742 per person on healthcare, the highest among wealthy nations. This is nearly twice the average of $6,850 per person for other wealthy OECD countries.
Over the next decade, it is estimated that America will spend between $55 and $60 trillion on healthcare if nothing changes and we continue to cut giant corporations in for a large slice of our healthcare money.
On the other hand, Senator Bernie Sanders’ single-payer Medicare For All plan would only cost $32 billion over the next 10 years. And it would cover everybody in America, every man woman and child, in every medical aspect including vision, dental, psychological, and hearing.
If we keep our current system, the difference between it and the savings from a single-payer system will end up in the pockets, in large part, of massive insurance giants and their executives and investors. And as campaign contributions for bought off Republicans. This isn’t rocket science.
And you’d think that giving all those extra billions to companies like UnitedHealthcare would result in America having great health outcomes. But, no.
Despite insanely higher spending, the U.S. has a lower life expectancy at birth, higher rates of chronic diseases, higher rates of avoidable or treatable deaths, and higher maternal and infant mortality rates than any of our peer nations.
Compared to single-payer nations like Canada, the U.S. also has a higher incidence of chronic health conditions, Americans see doctors less often and have fewer hospital stays, and the U.S. has fewer hospital beds and physicians per person.
No other country in the world allows a predatory for-profit industry like this to exist as a primary way of providing healthcare. Every other advanced democracy considers healthcare a right of citizenship, rather than an opportunity for a handful of industry executives to hoard a fortune, buy Swiss chalets, and fly around on private jets.
This is one of the most widely shared graphics on social media over the past few days in posts having to do with Thompson’s murder…
Sure, there are lots of health insurance companies in other developed countries, but instead of offering basic healthcare (which is provided by the government) mostly wealthy people subscribe to them to pay for premium services like private hospital rooms, international air ambulance services, and cosmetic surgery.
Essentially, UnitedHealthcare’s CEO Brian Thompson made decisions that killed Americans for a living, in exchange for $10 million a year. He and his peers in the industry are probably paid as much as they are because there is an actual shortage of people with business training who are willing to oversee decisions that cause or allow others to die in exchange for millions in annual compensation.
That Americans are well aware of this obscenity explains the gleeful response to his murder that’s spread across social media, including the refusal of online sleuths to participate in finding his killer.
It shouldn’t need be said that vigilantism is no way to respond to toxic individuals and companies that cause Americans to die unnecessarily. Hopefully, Thompson’s murder will spark a conversation about the role of government and the commons — and the very real need to end the corrupt privatization of our healthcare system (including the Medicare Advantage scam) that has harmed so many of us and killed or injured so many of the people we love.
For five days, the public was obsessed with the search for the man who murdered the CEO of United Healthcare. For a while, he seemed to be a mastermind, evading the surveillance state that so closely monitored his movements. But then he was caught while eating breakfast at a McDonald’s in Altoona, PA.
There is no excuse for murder. None, unless you are acting in self-defense, which Luigi Mangione was not. He has ended the life of Brian Thompson, the CEO of UHC, and simultaneously destroyed his own life. He is likely to spend the rest of his life in prison. Couldn’t he have thrown a bucket of red paint in protest? Or a cream pie?
The health insurance industry in this country is a mess. Most insurance companies operate for profit, and their actions seem to based on the prospect of profit, not the well-being of their customers. The industry makes obscene profits, based on its frequent denials of reimbursement.
This post was written by Qasid Rashid. When he learned that his child had a deadly disease, he sought help from his insurance company but was repeatedly denied any help. Read the story. It shows how repellent privatized for-profit insurance is. The insurance company was willing to let the child die rather than pay the cost of her desperately needed treatment.
He and his wife wrote:
This article is a deeply personal and vulnerable piece about our daughter Hannah Noor. It is primarily written by my wife Ayesha Noor. We are sharing this not because our daughter’s story is special, but sadly, because her story is all too common. Every year thousands of children and adults suffer incomprehensible pain, suffering, and even death. They suffer not because we lack the means to treat them, but because exploitative insurance companies, incompetent bureaucrats, and apathetic politicians deny them access to the life saving care they need. In light of recent events [See: America’s Violent Health System], we are sharing this story to bear witness to the preventable suffering of so many, the deadly violence imposed upon them, and to give hope that even in the darkest of times things can get better if we demand it. Let’s Address This.
Hannah Noor (Pictured Right) at 5 hours old.
A Scream in the Dark
It was just after her sixth birthday in 2021 when our daughter screamed from her bed in the middle of the night. We rushed to her room to find she had thrown up all over her bed. We cleaned her up, changed her sheets, and blamed the incident on the Oreos she’d eaten after dinner. The next day she complained of a stomach ache and rushed to the bathroom, experiencing diarrhea. Like most parents, we dismissed it as a passing bug—kids get diarrhea now and then. But something felt different this time, even though it was her first experience.
When it happened again just a short time later, the stomach pain was more severe. She screamed, cried, and rushed to the bathroom, but this time there was blood—so much blood. It terrified us. Before we could even make it to urgent care, she had another episode with even more bleeding. We hurried her in, only to be told by the nurse practitioner to “keep her hydrated” and that it was probably a stomach virus. But again, something in our gut told us otherwise.
This was just before Thanksgiving 2021, and I convinced myself she’d recover over the break and be able to return to school. She loved school, as most kindergarteners do. But the bleeding continued. The pain worsened. More urgent care and pediatrician visits followed, but answers did not. By now, our once energetic and chatty daughter was pale, frightened, and visibly losing weight.
Navigating Through the Dark
We reached out to a close friend who happened to be a pediatric gastroenterologist. His questions and careful listening indicated it was not a simple virus, but he didn’t say much directly. He urged us to connect with the GI team at Children’s National Hospital in Washington D.C. Unfortunately, we were met with insurance hurdles and skepticism from her pediatrician. Weeks passed, and her condition deteriorated until, thanks to our friend’s intervention, we finally secured an appointment with a pediatric GI doctor in December.
Hannah Noor, now frail and scared, was put on iron supplements, and an colonoscopy was scheduled for January. She now weighed just 30 pounds—skin and bones, and we feared the worst. Her fear of eating, going to the bathroom, or even moving too much consumed her days. Our winter break became a period of sleepless nights, endless tears, and prayers. We felt like prisoners trying to navigate through treacherous terrain while blindfolded and shackled.
The preparation for the scope was grueling—a 24-hour liquid diet. To make matters worse, a severe snowstorm in early January 2022 left us without power for three days. Despite the chaos, we made it to the hospital. As I held her tiny hand, she bravely went under anesthesia. Hours later, the doctors confirmed what we feared: Hannah had ulcers all over her colon.
Inflammatory Bowel Disease (IBD) was the diagnosis—a chronic, lifelong condition that would require extensive management. Even as the doctor explained, I couldn’t fully grasp the gravity of it. I naively asked, “How long will she need the medication?” The doctor replied—“Do you understand what it means to have IBD? This is for life.”
It shattered me. My world crumbled.
Steroids, with their array of side effects, initially helped stabilize her condition, and she was subsequently started on mesalamine. However, managing IBD is never straightforward. Moving homes and finding a new doctor compatible with our insurance became an uphill battle. Procuring mesalamine was a nightmare, as our insurance kept on requiring prior-authorization—a term we’d never even heard before. Evidently, even though our doctor had prescribed a specific medication to save our daughter’s life, the insurance company required their non-medically trained admins to agree that our board certified physician knew what she was doing in prescribing the medication she prescribed. Spoiler: They disagreed and repeatedly denied the critical medication our daughter needed.
Making matters worse, moving meant we were in between doctors. Desperate to try anything to improve Hannah’s quality of life, we spent hours consulting with a nutritionist to see if dietary changes could make a difference. We invested extensive time and resources into a gluten-free diet, but it did not help at all; in fact, it made her averse to eating. We also tried the FODMAP diet, which was recommended during a flare, but it added to the confusion of what she should or shouldn’t eat. Every day became a battle over something as simple as food—one filled with uncertainty and frustration. Despite our efforts, Hannah’s condition remained unpredictable, with debilitating flares continuing to disrupt her life. By late 2023, we had pursued every imaginable route to find a way to protect our daughter’s health and life, and yet felt exhausted and at a dead end.
It was clear that only one option remained—she needed a quickly advancing form of therapy known as biological treatment. This would be a direct IV infusion of medication to stabilize the IBD, every six to eight weeks, forever.
A Dark Dead End
We were at the end of the road. If we couldn’t access biologic treatment, there was nowhere left to go. But what we hoped would finally bring us closure and healing, resulted in yet another emotional roller coaster and painful circus—our insurance corporation blocked us. Turns out, insurance corporations block more than 51% of patients whose doctors prescribe them biologic treatment to save their lives.
The recommended biologic promised not a cure, but a chance at living a healthy life. Our insurance rejected us outright reasoning that we hadn’t tried other medications first—a policy called “step therapy.” Despite our daughter’s life threatening condition, they wanted us to try every other variation of every other possible medication—knowing full well they would likely fail just as much and make our daughter suffer, vomit, bleed, and lose weight. But that did not matter to them, because that was the preferable path to ensure they “maximized shareholder value.”
Our doctor stepped in and conducted a peer-to-peer direct meeting with the insurance company to show all the data, blood tests, and medical reports to prove that our daughter needed biologics to live. To show without a shadow of a doubt that the yet untried medications they demanded we try were not substantively different than the plethora of medications we had tried and had not worked. Yet, that meeting also went in vain. The insurance company still refused to approve our claim. And Hannah Noor’s condition worsened. She was pale, swollen from steroids, in pain, losing weight, and back to missing school.
We finally contemplated paying for the biologic treatment out of pocket. We knew it would only require six doses a year. How much could one dose be, after all? We checked and our hearts sank once more. Each dosage cost and administration would run into the tens of thousands of dollars. A year’s supply to keep our daughter alive would run into the hundreds of thousands. We certainly did not have that kind of money. We were cornered and desperate.
We contemplated what any parents might. Do we sell the house and cars and move into a small apartment? Do we set up a GoFundMe? Do we borrow money from family and friends? Do we take out a second mortgage?
Do we file for medical bankruptcy, as 500,000 Americans do annually?
But we soon learned another sinister result of hyper-privatization of health insurance—even if we had the excessive means to pay the hundreds of thousands of dollars out of pocket, the hospital would not accept the funds. Why? The industry is such that not only do insurance companies deny 51% of claims, they have enacted policies forbidding people from paying for the critical medication they need out of pocket, lest the insurance company lose control and revenue. “Either you pay us, or you pay no one,” is a line you’d expect out of a mafia handbook—not out of a health provider. This is not health insurance, this is health exploitation.
A Spark of Light in the Darkness
In that moment of confusion we happened to run into to a fellow parent who, now is a great friend, and learned her children shared a similar medical struggle. She suggested calling the biologic manufacturers directly and applying for their patient assistance program. An idea that seems so obvious now, but something we did not even know was a possibility then.
The application process was tedious, and even then, it was initially rejected. But after weeks of back-and-forth, countless phone calls, and sleepless nights, a miracle happened—we finally secured approval. We let out a cathartic sigh of relief after more than two years of suffocation. And to be sure, the approval was not through our insurance company, who never even bothered to offer such an option, likely because it would cost them money. Rather, the approval was from the drug manufacturer directly. To this day our health insurance company has refused to budge on their cruel and calloused “maximizing shareholder value” decision to deny our daughter the medicine she needs to live.
On March 6, 2024—more than two months after the doctor first prescribed it, a period in which our daughter suffered horrific and unimaginable pain, bleeding, and vomiting—Hannah Noor received her first infusion at Comer Children’s Hospital in Chicago. And since then, everything has changed. Her spark of light returned. Our daughter was back.
The Light We Create
A process that should have only taken 30-60 days from the night we heard that scream in the dark, took us on a 28 month torturous journey to finally see light again. Hannah Noor’s journey since starting biologic treatment has been a blessing. She’s eating, playing, drawing, and even learning karate (currently a Yellow Belt). The last three years of her life had been a torture for her, but now she is finally thriving as any 9-year-old girl should. Though the fear of flares always looms, we refuse to let it dictate our lives. Herbal and homeopathic treatments complement her medical regimen, and her strength inspires us daily.
As for our insurance company? Those corporate leeches also denied covering the hospital costs as well. Fortunately, despite that high price tag still running into the thousands, we tightened our belts and found a way to pay for that out of pocket, and continue to pay for that out of pocket. (We were shocked there wasn’t some additional insurance rule preventing us from paying our hospital directly). Despite us paying our insurance premiums every single month without exception, our insurance company has not covered a single penny of our daughter’s critical healthcare needs. The care she needs to live. But at least they’re maximizing shareholder value.
This story isn’t just about one child’s struggle with IBD; it’s about the systemic barriers hundreds of millions of families face every single day. From insurance denials to inaccessible care, to step therapy nonsense, to prior authorization red tape, the system fails the most vulnerable. What if we didn’t speak English? What if we couldn’t afford out-of-pocket costs for tests and treatments? What if one of our close friends didn’t just happen to be a national expert on this particular rare disease, and couldn’t leverage his relationships to get us access to a world leading expert? What if we didn’t have a network of supportive friends to recommend new ways to acquire this life saving medicine?
A Brighter Future Is Possible
We named our daughter Hannah Noor because Hannah was the mother of Mary Mother of Jesus, and Noor means light. We couldn’t think of a more beautiful name for our only daughter, and she has lived up to it every day of her life.
In these darkest of times, she is the Light of our eyes.
Hannah Noor (now 9) at a recent family vacation in Lahore, Pakistan. Here she is giggling at a cat that wandered over to say meow, which Hannah Noor reminded us means “hello” in cat language.
Hannah Noor’s story highlights a flawed and cruel system that places profits over people. Yet it also underscores the power of advocacy, persistence, and community. To every parent navigating the complexities of chronic illness: stay strong, fight relentlessly for your child, and lean on the resources available, like the Crohn’s and Colitis Foundation, and do not underestimate support groups on Facebook. If I can be of any support, do not hesitate to reach out at ayesha [dot] noor @ gmail.com.
Hannah Noor is living proof that even in the darkest moments, there is hope. She teaches us daily to believe in miracles—and to fight for them when necessary. It is also a reminder that our for profit exploitative health insurance system will always only serve the wealthy elites, the stock market, and whatever private investor who decides to buy and sell these corporations. They will not serve the people. Not our beautiful baby girl, nor the nearly 70,000 Americans who die annually due to lack of care, nor the 500,000 Americans who are forced to file for medical bankruptcy every single year. It is by the sheer grace of the Almighty that we still have our wonderful Light with us today. But for so many parents and families, the end result is not so fortunate.
Perhaps the most frustrating part about all of this is that the medication to save our child’s life existed all along. But because some calloused business person decided her life wasn’t profitable enough and worth saving, it was an acceptable cost to reject her claim and let her die.
It is our responsibility to demand better, not just for our daughter, but for all the daughters, sons, and children out there. We do not suffer from a lack of resources, but from an excess of greed. We can ensure high quality, accessible, and affordable healthcare for all people in this country—but we cannot ensure the satiation of greed for the billionaire corporations, corrupt politicians, and elitists who care more about shareholder value than the survival of innocent children. We have to choose one side. And we choose the children of this great country—we hope you do too.
For years, the City of New York has tried to force its public service retirees to give up their Medicare and move to a private Medicare Advantage plan. Many retirees understood that MA means privatization. Any serious medical needs required prior approval by the insurance company; it also meant that the insurance company could decline to pay. Retirees were furious, but it seemed hopeless, especially when a few powerful unions, including the United Federation of teachers, supported the city’s plan.
Marianne Pizzitola, who retired as an Emergency Medical Technician for the Fire Department, organized resistance to the plan. She found other retirees who were opposed to giving up Medicare and educated others about the downside of making the change. Marianne created an organization called the NYC Organization of Retired Public Service Workers.
The organization lobbied elected officials, litigated, and kept up the pressure.
Today, they won! They stood up the government of the City of New York, against overwhelming odds. And they won!
Brad Lander, the Comptroller of the City of New York sent out this letter this evening:
Dear New Yorkers,
Massive news for New York City retirees: Today the New York Court of Appeals rejected shifting retirees to a Medicare Advantage plan.
Today’s ruling is the final win for the 250,000 some retirees fighting to keep the health care they worked for and were promised! Seniors will continue to have access to all providers who accept Medicare, a victory for our public sector retirees.
The City’s Medicare Advantage plan would have constrained our retirees to a smaller network with more restrictive requirements on care. Many public servants entered the municipal workforce with the promise of middle-class wages, pensions, and a retirement plan. The shift to anything less than that full promise was a hard pill to swallow.
When the Medicare Advantage contract was submitted to my office last year, we declined to register it, knowing that litigation raised doubts about the City’s authority to enter into the contract. As a matter of public policy, beyond the scope of our office’s specific Charter responsibility for contract registration, I was seriously concerned about the privatization of Medicare plans, overbilling by insurance companies, and barriers to care under Medicare Advantage.
It is vital that all our seniors—and all New Yorkers—get quality health coverage as a basic human right. At the same time, given the growing costs of health care for both retirees and active employees, we cannot ignore that there are real cost questions facing the City when it comes to health care.
We know that Trump chose RFK Jr. to run the federal public health system as head of the Department of Health and Human Services. we know that Kennedy opposes vaccines. He has said that he would not ban vaccines outright but suggested that he might leave the decision about vaxxing to parents. We also know that senior Republican Mitch McConnell had polio as a child and does not like the idea of making the polio vaccine a matter of personal choice.
But we didn’t know much about what Trump believes or wants when it comes to vaccines.
Politico reports that he wants to keep vaccines, at least for adults. But he is doubtful about vaccine mandates for attending school. Public schools in every state require students to be vaccinated. If these mandates are reversed, we can expect to see a spread of the highly infectious diseases that were nearly eradicated.
Your child or grandchild might get measles or mumps or rubella or tetanus. These are deadly diseases.
Politico: •Vaccines: Trump said he’s a “big believer” in the polio vaccine, but he doesn’t like school mandates of vaccines (most states require vaccination from measles, mumps and rubella to attend public schools).
There’s online speculation that the Senate is warning to Robert F. Kennedy Jr., despite his reputation as an opponent of vaccines. RFK thinks he knows more than scientists and physicians, but he is a crank and a crackpot with no medical or scientific training.
The New York Times reported that Robert F. Kennedy Jr.’s’s lawyer Aaron Siri has repeatedly sued to block vaccines and mandates. Siri is now advising Kennedy as he selects high-level personnel for the Department of Heslth and Human Services. Kennedy’s reliance on Siri demonstrates that his opposition to vaccines has not waned and will animate his actions should he be confirmed.
The story begins:
The lawyer helping Robert F. Kennedy Jr. pick federal health officials for the incoming Trump administration has petitioned the government to revoke its approval of the polio vaccine, which for decades has protected millions of people from a virus that can cause paralysis or death.
Mr. Siri has also filed a petition seeking to pause the distribution of 13 other vaccines; challenged, and in some cases quashed, Covid vaccine mandates around the country; sued federal agencies for the disclosure of records related to vaccine approvals; and subjected prominent vaccine scientists to grueling videotaped depositions….
At the Trump transition headquarters in Florida, Mr. Siri has joined Mr. Kennedy in questioning and choosing candidates for top health positions, according to someone who observed the interactions but insisted on anonymity to disclose private conversations. They have asked candidates about their views of vaccines, the person said.
Are Kennedy and Siri determined to exclude those who understand the value of vaccines? No doubt.
“I love Aaron Siri,” Mr. Kennedy said in a clip played on a recent episode of a podcast hosted by Del Bigtree, who is Mr. Kennedy’s former campaign communications director and the founder of the Informed Consent Action Network, which describes itself as a “medical freedom” nonprofit. “There’s nobody who’s been a greater asset to the medical freedom movement than him.”
Like Mr. Kennedy, Mr. Siri insists he does not want to take vaccines away from anyone who wants them. “You want to get the vaccine — it’s America, a free country.” he told Arizona legislators last year after laying out his concerns about the vaccines for polio and other illnesses.
The Times notes that Siri has petitioned the Food and Drug Administration to withdraw approval of the polio vaccine as well as the vaccine for Hepatitis B.
Let me reiterate: Robert F. Kennedy Jr. is a dangerous crackpot. His beliefs kill.
In Houston, Lisa Gray of the Houston Chronicle interviewed Dr. Peter Hotez, a respected practitioner, about the Trump agenda for public health. This is part two of a two-part post.
Gray writes:
Recently, after outlining five terrifying infectious diseases and potential pandemics looming on the world horizon, vaccine researcher Peter Hotez said that he doesn’t believe that the incoming Trump administration is taking those threats seriously enough.
That alarmed me. I’ve been interviewing Hotez since early 2020, right after COVID infections showed up in the United States. As he’s the dean of the National School of Tropical Medicine at Baylor College of Medicine, he follows emerging disease threats closely. And with his team at Texas Children’s Hospital Center for Vaccine Development, he develops low-cost vaccines for low-income nations. During the pandemic, he became one of the most recognized medical experts on COVID — and a local hero here in Houston.
Videographer Sharon Steinmann and I spoke with Hotez in his office at Baylor. This Q&A has been edited for length and clarity.
Q: Why are you worried that the incoming Trump administration may not be ready for public-health threats on Day 1? Is that based on the people Donald Trump has named to health positions?
A: I’m concerned that the Trump administration is picking individuals based on their ideologies rather than either their subject-matter expertise or their ability to get things done in government.
Q: You’ve been acquainted for years with RFK Jr. — Robert F. Kennedy, Jr., who Trump has nominated to be secretary of the U.S. Department of Health and Human Services. How did you meet him?
A: I used to call him “Bobby.” I got to know him because in 2017 he indicated that he was going to head a vaccine commission for the new incoming Trump administration.
I was in my office, here where we’re speaking now, and my assistant said, “Hey, Dr. Hotez, I have Dr. Anthony Fauci and Dr. Francis Collins on the phone. Can you talk to them?”
Q: Whoa! Those are two big names in your field.
A: [Grins.] I said, “Yeah, I guess I’ll take the call.”
They said, “Peter, we’ve got a job for you. If anyone can explain to Kennedy why vaccines don’t cause autism, it’s you.”
They asked because I was a scientist and a pediatrician, and most importantly, I’d written a book, “Vaccines Did Not Cause Rachel’s Autism,” explaining how I can be sure that my daughter’s autism is not linked to vaccines.
Tim Shriver, a terrific guy who heads the Special Olympics, brokered a meeting for us with RFK Jr. And for months after that, I had a number of long, long phone conversations with Bobby. Sometimes that would be while my wife Ann and I were out for a long walk through Montrose, and she’d listen in.
Q: How did that go?
A: Our conversations weren’t very productive. It was an exercise in frustration, probably for both of us. He was pretty dug in. Either he didn’t understand the science or he didn’t have a lot of interest in it.
For instance, I would point out to Bobby that autism is a neurodevelopmental condition that starts early in pregnancy. We know this from multiple neurodevelopmental studies. So autism is well in motion before kids ever even see their first vaccine.
In addition to that, the Broad Institute, at Harvard and the Massachusetts Institute of Technology, had also identified at least a hundred autism genes. Many of them are a type of gene called the neuronal cytoskeleton gene, which is involved in neuronal connections. (My wife Ann and I actually did a whole-genome sequencing on Rachel. We found that Rachel’s autism gene is different from the ones published by the Broad Institute, but it’s similar — it’s a neuronal cytoskeleton gene.)
Sergiu Pasca and his associates at Stanford University Medical School have also looked at what they call brain organoids. They can put neurons together in a petri dish and basically assemble them as mini-brains. This has been done now with neurons that have autism genes, and so the aberrant neuronal patterns really tell the complete story now.
It was frustrating to me that Bobby didn’t pay attention to the science and instead spouted dogma.
A: I got to know her during the COVID pandemic. She was a Fox News talking head, and I was going on Fox News pretty regularly in the evenings until I wouldn’t go along with the hydroxychloroquinine nonsense.
At the time, we talking heads on the various news channels would talk to each other. That was helpful because we were learning from each other. We all brought different expertise to the table.
Dr. Nesheiwat had a lot of humility. She wanted to know my opinion on COVID vaccines, how they worked and what were the different technologies. She was inquisitive and delightful to talk with. So I’m excited about her role as surgeon general. That’s at least one silver lining.
Q: Are there other silver linings?
A: Yeah. The other person that I got to know during the pandemic was Mehmet Oz, Dr. Oz, because he had a show with wide reach. I would go on his show and talk about COVID vaccines.
I liked being on his show. He was respectful and thoughtful. He asked good questions and gave me an opportunity to talk to daytime audiences — people I wouldn’t ordinarily reach. I was grateful for that opportunity.
I think that both Dr. Nesheiwat and Dr. Oz are effective communicators. I think President-elect Trump wants to bring on good communicators.
Dr. Oz is heading a very bureaucratic organization, the Centers for Medicare and Medicaid Services. I don’t think that’s a perfect fit for him — he’d have been better off as something like surgeon general — but we’ll see.
Lisa Gray is the op-ed editor and a member of the Houston Chronicle editorial board. During the pandemic, she was the Chronicle’s lead COVID reporter.
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