Dr. Michael Hynes is the Superintendent of Schools in Port Washington, Long Island, New York.
He writes:
My daughter Sadie has taught me more in her 9 years of life than I have learned in my past 52 years of existence. My wife Erin and I had no idea that our daughter had Down Syndrome when she was born. Sadie had to stay in the newborn intensive care unit for a few weeks and we met some of the most compassionate and amazing professionals in the world. Unfortunately, we also met others who were much better off keeping their thoughts to themselves.
I remember a doctor at the hospital telling me he was “sorry” after Sadie was born. On another occasion, a family member shared with my wife and I that “Mongoloids can be nice people.” She didn’t mean to upset us; it was her mental model about Down Syndrome. Initially, as parents we were surprised with the multitude of closed-minded comments we came across. As Sadie grew and we brought her to restaurants, stores or in public, people would stare at her longer than one should.
I’m sharing this with you not to complain; but doing so because we began to learn how the world can perceive others without knowing anything about them whatsoever, except through the lenses of their biases and assumptions. Little did they know our little Sadie has the best sense of humor and can read on grade level like here peers. She enjoys music and hanging out with her best friends like all children do. As parents, we began to advocate for more programs in her school and for the school districts we served in.
I probably should have started off this reflection by sharing both Erin and I are school Superintendent’s. She is an Assist Superintendent for Curriculum and Instruction and I have served as a Superintendent of Schools for the past 11 years. Here are the lessons we learned from our personal lives that now transcend to our professional ones.
- You never know what others are going through. I have a much deeper respect for parents who have children with autism, Down Syndrome, ADHD, OHI, etc. They have incredible stories to share, and we need to support them as much as their children.
- Never place limits on your child or students. Don’t accept what professionals say at face value all the time. If Erin and I listened to what some professionals believed Sadie would never be able to do, her life would be so much more unfulfilled. She is flourishing.
- In the education system I have served in for over 25 years, we need to remove the word “special education”. This word places a label on a child that never leaves them and carries a negative connotation with it. Yes, the children are “special”, but they are certainly not less than “typical children”. By the way I loath that phrase as well.
- Inclusion is important. Integration however is critical. It’s great to be included but to be fully integrated is where the secret sauce is. Separating and segregating children is not the answer. Teach them to become independent and watch them soar!
Sadie is now in 4th grade. She continues to surprise people with her intelligence, humor and at times stubbornness. We are so fortunate to have her in our lives. There are other “Sadie’s” in every school in America. Are we as school leaders doing everything in our power to make our school system more inclusive and integrated? That’s for you to answer and my hope is that you strive to make that a reality. Every child will benefit from it.

The problem with special education is administrators expect all children should do the same curriculum whether they can talk, write or not. In general education classes, they are packed and expect these kids to move faster than they should be. Kids who are classified as needing special education require more individual attention which can only be done in a smaller more flexible setting. Play is a rarity, but so necessary as part of communication. Sounds like Erin has great parents but every kid doesn’t have that luxury. I had a cute little lad with Down Syndrome and his mother put him up for adoption.
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There are no standardized kids. People who don’t grok this should be kept as far as possible away from planning and administration of schools.
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Exactly.
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Amen. My primary teaching license is in special education and it is the one of my three licenses under which I have operated for most of my career. I don’t know what to say about this heartfelt, edifying post other than this: in my experience, what teachers and administrators don’t understand about Down Syndrome and the rich, diverse, potential of students operating under this mild genetic variation could fill an ocean. So thank you Mike Hynes.
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Amen again!
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Thank you so much for sharing this, Diane and Mike. One of the more meaningful posts in quite some time.
I love to watch British comedy and have noticed that people with disabilities are often featured in chat shows, just as a normal course. Treated like everyone else and celebrated for their talents. We talk the talk of disability rights, but rarely walk the talk. It’s nice to see the Brits take the lead on this.
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I have a friend on the autism spectrum who is a world-class number theorist, another on the spectrum who is an aerospace engineer. It’s not at all a bad idea to have a guy on the spectrum doing the failure modes and effects analysis for the engine of the machine that is going to be carrying you 30,000 feet into the air. There are times when that kind of obsessiveness is a superpower.
Psychiatrist Thomas Szasz is relevant here. So are the indigenous American tribes who made shamans or heyokas of some folks with different kinds of minds.
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What a beautiful piece, Dr. Hynes!
Blow you away beautiful.
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god bless you.
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“If Erin and I listened to what some professionals believed Sadie would never be able to do, her life would be so much more unfulfilled. She is flourishing.”
Thank God my mother also did not listen to a couple of those so-called educational professionals when I was seven years old in 1952. They told her that I was so retarded I’d never learn to read or write. There were no classes labeled “Special Ed” back then.
My mother cried on the way home, that I remember. She went to bed miserable and woke up determined to teach me how to read and write. For help, she went to my first grade teacher and asked for advice and followed it. That teacher did not tell her I would never learn to read and write. Those so-called professionals my mother talked to were in admin and were not classroom teachers.
A few years later, I was an avid reader and I have never stopped reading. My favorite places were libraries and book stores.
In high school, I read two paperbacks a day. I had lots of time. Since I was retarded, most of my teachers just let me sit in the back and ignored me. They all passed me with D’s as if they felt sorry for me, so I took advantage of that and didn’t pay attention to their lectures or do any homework. That’s why I graduated form high school with a 0.95 GPA. Meanwhile, I hid my paperback fiction in my huge open hardback textbooks and read science fiction, fantasy, historical fiction, westerns, mysteries, et al. while most of the other students in each class were being students. I preferred being a reader.
I learned more from those paperbacks than anything any of my teachers taught K through 12. My guess is that during high school I read about 3,000 books, because I read on the weekends and summer breaks, too.
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Wow, Lloyd. Thanks for sharing your story! And you became such a fine writer!!!
Those who seek to standardize schooling are clueless. Kids come in enormous, enormous variety, and an extraordinarily diverse economy NEEDS people of lots and lots of different kinds. Schooling must have many tracks appropriate to different kinds of kids with different kinds of minds and differing superpowers. Every good teacher groks this, that kids differ. Every “education reformer” is clueless about this. Especially Bill Gates, which is breathtakingly ironic.
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Children are not widgets or their test scores. All children should be loved, accepted and accommodated when needed. There are many different types of people in the world, and we need to learn and practice tolerance of individual differences.
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An extraordinarily diverse, pluralistic economy needs all these different kinds of minds, not people identically milled. Kids are not screws to be standardized.
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I think it was Yong Zhao who wrote about the value of biodiversity.
Standardization is death to creativity and innovation.
Heterogeneity of thought is more interesting and stimulating than homogeneity.
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