A parent in Chicago discovered a massive breach of private data about students in private schools receiving special education services. The data was controlled by Chicago Public Schools, but obviously with little regard for privacy. The parent was a student Privacy activist, Cassie Creswell.
The following post is by Cassie Creswell, a Chicago parent activist from Raise Your Hand Illinois and a key member of our Parent Coalition for Student Privacy. In January, Cassie also testified on our behalf at the Chicago hearings of the Commission for Evidence-Based Policy against overturning the ban to enable the federal government to create a comprehensive student database of personally identifiable information.
More recently, upon examining expenditure files on the Chicago Public School website, Cassie discovered the names of hundreds of students along with the disability services they received at numerous private and parochial schools. She immediately contacted several reporters, and though an article in the Sun-Times subsequently briefly reported on this breach, the reporter did not mention that it was primarily private and parochial students whose data was exposed. In addition, legal claims for special education services that CPS had originally rejected were included along with student names. Cassie’s fuller explanation of this troubling violation of student privacy is below — as well as the fact that at least some of these schools and families have still not been alerted to the breach by CPS.
Cassie writes:
Once again, Chicago Public Schools has improperly shared sensitive student data, the Chicago Sun-Times reported on February 25th.
Medical data about students used to administer outsourced nursing services was stored on an unsecured Google doc available to anyone with the link. And personally-identifiable information (PII) about students with Individualized Education Programs (IEPs), including their name, student identification numbers and information about services and diagnoses related to their disabilities, were included in files of detailed vendor payments posted on the district’s public website.
I discovered this latter information in the vendor payment data, while in the course of searching for information about standardized testing expenditures. The files covered seven fiscal years, 2011-2016, but were only posted on the CPS website this past summer. Noticing what appeared to be a student name and ID number listed in the file struck me as surprising and likely a privacy violation. All in all, there were more than 4500 instances in the files where students’ names appeared along with the special education services they received.
Upon closer examination, it was clear to me that there was a great deal of highly sensitive student personal information that had been disclosed, with payments made from CPS to educational service providers assigned to hundreds of students with special needs attending private schools as well as public schools. Included were the name of the students, the schools in which they were enrolled, their ID numbers, the vendors who had been hired and the services they provided according to the students’ diagnoses. The funds for the payments came from public funds routed through the students’ home districts, CPS, to fulfill requirements of the federal Individuals with Disabilities Education Act (IDEA) for spending on special education students enrolled in private schools.
This breach has since been confirmed as violating federal and state privacy laws — at least in the case of the public school students whose personal information was disclosed and likely the private school students as well.

How long will those federal and state privacy laws exist before the malignant narcissist in the White Houe and the malignant GOP in Congress sweeps them away without any warning or discussion?
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Lloyd,
I so enjoy your enlightened commens. You are so right on about this one.
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How about the House committee passing along a bill that will allow employers rights to your genetic information???
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I wish student privacy laws were more widely known. In my neck of the woods, there are many who use websites and email without discretion, without thinking about the consequences. They are not aware of the dangers. And then, there are many who see the internet as futuristic and do not
care if there are dangers.
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Diane,
THANKS FOR THIS. What would we do without you? I think I speak for many. THANK YOU!
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Agree 100%.
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I am not surprised. In many instances, people totally ignore or are unaware of how to handle sensitive information. In one district where I worked, IEP documents, were routinely just thrown in the trash and sat in dumpsters with all the other trash. It didn’t dawn on anyone that these documents should be shredded. The school psychologist bought a small, inexpensive shredder that soon broke. I took my paperwork to the district office and used their industrial size shredder. I have no doubt that most of the teachers and administrators simply dumped theirs in the trash. Someone could probably make a living raiding school trash dumpsters at the end of the year for potential lawsuit information. I am sure there are parents who would be thrilled to know their child’s old paperwork was simply tossed in the trash.
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DATA. A subject clearly begging for legislation & enforcement. Not only can it be made public w/impunity [laws unenforced], it can be taken private tho’ paid for & owed to the public [laws non-existent]. Dept of Ag just took all its animal-testing data offline, available now only by FOIA.
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Districts are outsourcing a lot of work to private contractors. These contracts are almost always written so the district is responsible for breeches of privacy. The accumulation of big data about students is big business. Few districts can afford to the legal and tech staff to deal with the issue of student privacy.
That is to say noting about ignorance and careless use of commercial sites and software.
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Dear Chicago,
Just wait ’til your Personalized Learning initiative kicks in! That brings on a whole new world of opportunity for major, MAJOR, M-A-J-O-R privacy breaches. And some of them might not even be breaches, per se — although technically it’s data you might not actually wish for third-party vendors to have ( but they will –and they likely already do!). It’ll be your school systems’ vendors collecting info on your kids and they will say that it is necessary in order to adapt software programs to your child, so to put the “personalized” in Personalized Learning.
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